We will publish letters and comments on this site.  They will rotate often as we believe actual letters and case reports are an excellent resource for arachnoiditis patients to improve their care.  Send your letter to “Arachnoiditis Research & Education Project“.

You may send your questions to tennantfoundation92@gmail.com, fax to 626-919-7497, or mail to:

The Tennant Foundation

Arachnoiditis Research Project

336-338 S. Glendora Ave.

West Covina, CA 91790-3043

YOUR QUESTIONS AND OUR ANSWERS ARE UPDATED FREQUENTLY

Dear Tennant Foundation,

2 days ago, I have received my 3rd shot. During my appointment with my doctor, we discussed your suggestion in your last E-Mail, in reference to the use of corticosteroid.

My doctor calculated the daily intake of corticosteroid, based on the monthly injection, and he found out, that this will result only to a daily intake of 1.5mg of corticosteroid. That means it is safe to take and it will not result in side effects of using too much corticosteroid.

What we are going to try now is to take the 4th shot in 2 months, instead of 1 month. If this works out well, we will keep the 2-monthly injection or a 1 1/2-month injection.  For me, this injection is the best thing that could have happened, since I have been diagnosed with AA. I have found much better quality of life and less pain.

Thanks goes out to you and your team by working so hard on behalf of us patients.

Best regards, BA

ANSWER

Dear BA,

You and our physician are to be complimented.  The periodic injection of a corticosteroid is safe, and you clearly stated, “I have found a much better quality of life and less pain”.

Best wishes, Forest Tennant

Tennant Foundation,

Do you still recommend Pentoxifylline and Vitamin E to get rid of the scar tissue? It would be great if it works; what’s the risk?

Thank you for your time, DS

ANSWER

Dear DS,

Thanks so much for your interest in dissolving the fibrotic scars of AA.  The use of pentoxifylline with vitamin C was first used to reduce the scarring of epidural fibrosis (EF).  EF is one of the spinal canal inflammatory disorders (SCIDs) that can develop from protruding discs, trauma, or arachnoid-dural puncture.  Some persons with AA have done exceedingly well with pentoxifylline but it is not helpful with symptomatic pain relief, so most patients don’t want to wait two or three months to see results from pentoxifylline.

I haven’t written about it yet, but the trace minerals, selenium, and boron, are being found to be of great help to some AA patients.  We believe their benefits are scar and adhesion dissolution with the freeing of some nerve roots.  The dose of selenium is 200 to 400 mg a day and that of boron is 2 to 4 mg a day.

Best wishes always,
Forest Tennant

Hi Tennant Foundation,

The other day my 2nd Covid Shot went okay. Very much felt like yuk on Friday the day after (above and beyond the arachnoiditis) It tore up my arm with swelling, and pain but is resolving today. For the record I had Moderna if you are keeping track of adverse symptoms.

My question is, with the constant pain, can that be the cause of my feeling of exhaustion, even after doing minor things? Are there things that should be tested for?

I am having a C spine/ lumbar MRI on May 20, to finally rule out any additional mechanical or nerve compression issues. Will be seeing the neurosurgeon after the test. I had to rule out pseudarthrosis of the fusions I have. C 3-7 and L 4-5. All the x-rays and Cats indicate solid joints, but they want to be sure nothing else is a possible cause of the pain in my lumbar/legs and now my neck. The arachnoiditis was seen on a myelogram (unfortunately) two years ago and all symptoms are getting worse. As you know one of the main problems is that doctors don’t know much about this disease and are not opened to treating it beyond pain management.

If you do have any advice about the issue of being tired, I would appreciate it.

Thanks, B

ANSWER

Dear B,

Unfortunately, AA, and other spinal canal inflammatory disorders (SCIDs) usually cause fatigue and exhaustion.  Extra rest may be necessary.  In your situation you need blood tests for inflammatory markers and these specific hormones: cortisol, pregnenolone, DHEA, and testosterone.  Exhaustion in persons with AA is usually associated with active inflammation and/or a hormone deficiency.

Best wishes always,
Forest Tennant

Tennant Foundation,

I need some help.  I have been experiencing immense pain on my left side across my buttocks around my left hip, groin and down my legs.  My pain specialist wants to do two epidural shots at the same time at my L2/L3 and my S1 levels.  I’m scared to do so because I believe a shot, I’m 2013 caused my AA.  I don’t know what to do and the pain is ridiculous a new MRI from March shows small annular tears at the L2/L3 level and the L3/L4 level.

Please let me know what you would recommend. M

ANSWER

Dear M,

We do not recommend epidural injections in persons who have MRI-documented AA.

We do recommend injections into the sacra iliac joints, hips, facets, and soft tissues that are outside the spinal canal.  Your pain could possibly benefit from an injection that is outside the spinal canal including the epidural space.

Best wishes always,
Forest Tennant

Dear Tennant Foundation:

I am now taking a Multi Vitamin that has lots of the B Vitamins, and other Vitamins and minerals, but….  I take several types of silica, multi – collagen, Magnesium L-Threonate, lots of Vit C, an additional Vit B 12, Cannabis Full Spectrum Extract, Kratom, Pregnenolone, DHEA, Fish Oil, Mushroom Extract from the fruiting bodies, protein powder (mix of hemp, pea, and rice), Hemp oil, Curcumin, Boswellia, boron, biotin, Glucosamine MSN, Vit D 5000 units QD, Vit K, etc….  I am waiting for the Corydalis and Vit B (Bentofiamine) to come in the mail. I will take Serrapeptase after surgery.  My diet is mostly Keto, but I do delve into bread and pasta in limited portions and ice cream.  I make sure I get a good amount of fats from pumpkin seeds, walnuts, olive oil, beef, hemp, Ghee.  I may need to increase them, not sure.  What about Nuphoria® Gold and Blue?

AL

ANSWER

Dear AL,

I have reviewed the ingredients in Nuphoria Gold and Blue.  They are winners!  Their main ingredient is alpha lipoic acid which should be given a trial by every person who suffers burning feet or ankles.

Best wishes always,
Forest Tennant

Dear Tennant Foundation,

I hope this email finds you well. If one has kidney disease and AA, what number of milligrams of turmeric or curcumin can one take daily? Thanking you in advance for your usual kind cooperation and valued opinion.

Sincerely, JK

ANSWER

Dear JK,

I would limit the dose to about 2000mg in a 24-hour period.  I doubt the curcumin/turmeric can damage the kidney, but let’s not take chances.

Best wishes always,
Forest Tennant

Hi Tennant Foundation,

Thank you so much for getting back to me. Can you tell me if I can take DHEA and adrenal cortex when I’m also taking Lyrica®? I thought I had read somewhere that you shouldn’t take DHEA and adrenal cortex when you’re on anticonvulsants, but I hope that’s not true! Can I take these things together?

Thanks for your help, KB

ANSWER

Dear KB,

Certainly, you can take DHEA and adrenal cortex with Lyrica®.  In fact, this is an excellent program.  More people should adopt it.

Best wishes always,
Forest Tennant

Tennant Foundation,

We devised a crazy but highly effective foot treatment with white socks dipped in 20-25% strength DMSO.  You can dilute it with distilled water then ring them out put them on and if you are lying-in bed put a plastic bag around each foot and the nerve pain will be gone instantly.  It usually lasts for about 2-3 hours then just repeat the action.

Thank you, AM

ANSWER

Dear AM,

What a great idea and treatment for burning feet.  If you don’t mind, I’ll spread the news!!  I’ve just received a report that Nuphoria helps burning legs and feet.  It has alpha lipoic acid in it as well as other agents.

Best wishes always,
Forest Tennant

Tennant Foundation,

I have in my head lots of plans how to help to collect money for this cause (even if I will be negative for AA, so I hope).  As being a health care provider, it bothers me so much that I ever heard about this devastating, debilitating disease.   My colleagues also needed to check what it is.  This to itself is wrong.

Happy Sat and Sun, N

ANSWER

Dear N,

Your comment that, as a healthcare provider, you had never “heard of this devastating debilitating disease” made my day.  I hate to admit it, but I’ve concluded that there are a few conditions like AA that modern medicine wants to ignore.  “Cure” may be elusive, but we can bring a lot of “relief and recovery” to every community and to all who may have AA.

Best wishes always,
Forest Tennant

Thank you Tennant Foundation.

I am so convinced! It has been amazing. I’m feeling so much scar tissue breaking down every day. I get painless fasciculations all day as my nerves is loosened up from the scar tissue. I have gotten a few others with AA on it, and they have been seeing improvements as well! I agree with you that mineral balance is key. I did a test called “Vibrant America” and it looks at intracellular levels of minerals. It doesn’t look at Boron, but it did show my Copper is low. This or another test called “Spectracell” which is similar. Both are great to look at intracellular levels of minerals, however both are expensive- around 500$.

I take 2 mg daily. I have heard of people (not with AA) taking up to 20 mg daily. My friend who is a larger male is taking 4 mg successfully. I’m happy for you to share it, and I’m hopeful it will help many!

TH

ANSWER

Dear TH,

We’ve started to promote the minerals magnesium threonate, selenium, and boron.  I’ve checked out boron and believe you have made the discovery of 2021.  Please keep looking!!  You’ll help more people than will the COVID vaccine!!  At this point I believe all persons with AA should give boron a trial.

Best wishes always,
Forest Tennant

Dear Tennant Foundation,

I look forward to the bulletin every month. Thanks also for speaking with my cardiologist two weeks ago. This new complaint came as a big surprise. I had seen mention of cardiovascular issues in one of your books and had mentioned it to him. He, like so many other doctors here had never heard of arachnoiditis and so every time I am going to a doctor, even for repeat visits, I take one of your books along.

Kindest regards, CW

ANSWER

Dear CW,

Compared to common diseases like asthma and diabetes, AA is quite rare.  Consequently, many doctors have only heard of it.  You are wise to always carry material to inform doctors about your rare disease.

Best wishes always,
Forest Tennant